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Paediatric nurses should care for children with diabetes

Jane Houghton

I would never underestimate the excellent diabetes care given to children by DSNs who have no paediatric qualifications. The emphasis should be on the well child with a disorder who will grow and develop like any other child. However, I do find that there are other factors to consider in the provision of care to this group. There are other aspects of childhood illnesses that are relevant and, furthermore, children are not simply ‘little adults’.

The idea that children should be nursed by nurses trained in paediatrics, such as Registered Sick Children’s Nurses (RSCNs) or Child Branch, is not new. The Platt Committee Report (Ministry of Health, 1959) recommended that children should enjoy the care of appropriately trained staff, fully aware of the physical and emotional needs of each age group. The Court Committee Report (Ministry of Health, 1976) emphasised the need for children to be nursed by RSCNs whether at home or in hospital, and recommended that community services for all children should be expanded.

Why specialist care?
The physical, psychological and physiological needs of children differ widely from those of adults; hence, nurses who care for them require different knowledge, skills and attitudes. As well as the knowledge of different techniques, children’s nurses need an understanding of child development and of the importance of the family in a child’s life. It is essential that children’s nurses have the ability and temperament to work alongside parents, sharing care with them as equal partners (BPA/NAWCH/NAHA/RCN, 1987). Involving parents in care also requires special skills in teaching and support. There must also be an awareness of the purpose of, and need for, play. All of the above are essential components of RSCN training (Audit Commission, 1993).

Children are unique developing individuals who have the right to receive care from appropriately qualified nurses. Nurses on other parts of the register will not necessarily have the appropriate attributes (DoH, 1991).

The challenge
There are concerns about the lack of children’s nurses outside designated units and the lack of commitment to employ RSCNs, increasing concerns about child protection issues, support for parents, increased unnecessary admissions and lack of facilities for adolescents (RCN PCN Forum, 1994).

Some sections of the child population are thought to receive a particularly inadequate service, e.g. adolescents, minority groups and children with special needs in mainstream schools (DoH/King’s College Hospital, 1996).

In order to deliver a seamless service for children, an integrated model, incorporating primary, secondary and tertiary care services, should be adopted wherever possible for the provision of children’s nursing services. Quality adolescent services should be commissioned. Nurses must collaborate with other healthcare professionals to provide nursing care for children that recognises the particular needs of the child (Yorkshire Regional Health Authority, 1992).

The Patient’s Charter (NHS/DoH, 1996) states that whether children are nursed at home, on an adult ward or on a children’s ward, they should have a named qualified children’s nurse; children with a major chronic condition should be under the care of a paediatrician and a children’s nurse. It is now the norm for children in hospital to be nursed by qualified children’s nurses but this standard has still not been fully accepted in the community (RCN PCN Forum, 1994).

Tide of opinion
Specialist nurses can improve how children with diabetes understand and cope with their illness. Parents surveyed in 1988 indicated increased satisfaction with support if a paediatric, rather than an adult, diabetes service was provided (RCN PCN Forum, 1994).

The St Vincent Declaration states that the care of children with diabetes should be provided by individuals and teams specialised in the management of diabetes and of children (WHO, 1989). To achieve this, it has been suggested that each health district should have a paediatric diabetes nurse specialist (BDA/BPA, 1996). Later documents state that they are required (BDA, 1999).

Role and Qualifications of the Nurse Specialising in Paediatric Diabetes (RCN PDSIG, 1998) is based on the philosophy that the needs of the child with diabetes can only be met by a paediatric nurse who:

  • Has extended skills in diabetes care, as an educator, counsellor, manager, researcher, communicator and innovator
  • Is held responsible for his/her own actions 
  • Is registered on part 8 or part 15 of the Register of Nurses (RCN PDSIG, 1998).

Personal experience
On my caseload, there are children who have paediatric life-limiting conditions or mild-to-moderate learning difficulties; others are school refusers and/or suffer bullying at school. There are also a number of minor paediatric surgery cases. I am also faced with child protection issues (I have to attend regular updates on child protection). All these require a knowledge of diabetes and paediatrics.

As I stated initially, I know that many DSNs who are not qualified paediatric nurses give excellent diabetes care to children. I am also aware that, because of DoH recommendations, several of these nurses have been encouraged by their managers to undergo RSCN training in order to keep their paediatric caseloads. They do not qualify for the shortened course and have to undergo 14 months training. Perhaps this needs to be addressed by educationalists.

Conclusion
In conclusion, qualified children’s nurses are trained in child protection, child development, the use of play, and holistic care for the whole family. Diabetes nurses caring for children should ideally be paediatric nurses with extended skills in diabetes care.

I would never underestimate the excellent diabetes care given to children by DSNs who have no paediatric qualifications. The emphasis should be on the well child with a disorder who will grow and develop like any other child. However, I do find that there are other factors to consider in the provision of care to this group. There are other aspects of childhood illnesses that are relevant and, furthermore, children are not simply ‘little adults’.

The idea that children should be nursed by nurses trained in paediatrics, such as Registered Sick Children’s Nurses (RSCNs) or Child Branch, is not new. The Platt Committee Report (Ministry of Health, 1959) recommended that children should enjoy the care of appropriately trained staff, fully aware of the physical and emotional needs of each age group. The Court Committee Report (Ministry of Health, 1976) emphasised the need for children to be nursed by RSCNs whether at home or in hospital, and recommended that community services for all children should be expanded.

Why specialist care?
The physical, psychological and physiological needs of children differ widely from those of adults; hence, nurses who care for them require different knowledge, skills and attitudes. As well as the knowledge of different techniques, children’s nurses need an understanding of child development and of the importance of the family in a child’s life. It is essential that children’s nurses have the ability and temperament to work alongside parents, sharing care with them as equal partners (BPA/NAWCH/NAHA/RCN, 1987). Involving parents in care also requires special skills in teaching and support. There must also be an awareness of the purpose of, and need for, play. All of the above are essential components of RSCN training (Audit Commission, 1993).

Children are unique developing individuals who have the right to receive care from appropriately qualified nurses. Nurses on other parts of the register will not necessarily have the appropriate attributes (DoH, 1991).

The challenge
There are concerns about the lack of children’s nurses outside designated units and the lack of commitment to employ RSCNs, increasing concerns about child protection issues, support for parents, increased unnecessary admissions and lack of facilities for adolescents (RCN PCN Forum, 1994).

Some sections of the child population are thought to receive a particularly inadequate service, e.g. adolescents, minority groups and children with special needs in mainstream schools (DoH/King’s College Hospital, 1996).

In order to deliver a seamless service for children, an integrated model, incorporating primary, secondary and tertiary care services, should be adopted wherever possible for the provision of children’s nursing services. Quality adolescent services should be commissioned. Nurses must collaborate with other healthcare professionals to provide nursing care for children that recognises the particular needs of the child (Yorkshire Regional Health Authority, 1992).

The Patient’s Charter (NHS/DoH, 1996) states that whether children are nursed at home, on an adult ward or on a children’s ward, they should have a named qualified children’s nurse; children with a major chronic condition should be under the care of a paediatrician and a children’s nurse. It is now the norm for children in hospital to be nursed by qualified children’s nurses but this standard has still not been fully accepted in the community (RCN PCN Forum, 1994).

Tide of opinion
Specialist nurses can improve how children with diabetes understand and cope with their illness. Parents surveyed in 1988 indicated increased satisfaction with support if a paediatric, rather than an adult, diabetes service was provided (RCN PCN Forum, 1994).

The St Vincent Declaration states that the care of children with diabetes should be provided by individuals and teams specialised in the management of diabetes and of children (WHO, 1989). To achieve this, it has been suggested that each health district should have a paediatric diabetes nurse specialist (BDA/BPA, 1996). Later documents state that they are required (BDA, 1999).

Role and Qualifications of the Nurse Specialising in Paediatric Diabetes (RCN PDSIG, 1998) is based on the philosophy that the needs of the child with diabetes can only be met by a paediatric nurse who:

  • Has extended skills in diabetes care, as an educator, counsellor, manager, researcher, communicator and innovator
  • Is held responsible for his/her own actions 
  • Is registered on part 8 or part 15 of the Register of Nurses (RCN PDSIG, 1998).

Personal experience
On my caseload, there are children who have paediatric life-limiting conditions or mild-to-moderate learning difficulties; others are school refusers and/or suffer bullying at school. There are also a number of minor paediatric surgery cases. I am also faced with child protection issues (I have to attend regular updates on child protection). All these require a knowledge of diabetes and paediatrics.

As I stated initially, I know that many DSNs who are not qualified paediatric nurses give excellent diabetes care to children. I am also aware that, because of DoH recommendations, several of these nurses have been encouraged by their managers to undergo RSCN training in order to keep their paediatric caseloads. They do not qualify for the shortened course and have to undergo 14 months training. Perhaps this needs to be addressed by educationalists.

Conclusion
In conclusion, qualified children’s nurses are trained in child protection, child development, the use of play, and holistic care for the whole family. Diabetes nurses caring for children should ideally be paediatric nurses with extended skills in diabetes care.

REFERENCES:

Audit Commission (1993) Children First, A Study of Hospital Services. HMSO, London
BDA/BPA (1996) (British Diabetic Association/British Paediatric Association) The Principles of Good Practice for the Care of Young People with Diabetes. BDA, London
BDA (1999) Recommendations for the Strucutre of Specialist Diabetes Care Services. BDA, London
BPA/NAWCH/NAHA/RCN (1987) (British Paediatric Association/National Association for Welfare of Children in Hospital/National Association of Health Authorities/Royal College of Nursing) Where are the Children? Caring for Children in the Health Services. HMSO, London
DoH (1991) (Department of Health) Welfare of Children and Young People in Hospital. HMSO, London
DoH/King’s College Hospital (1996) A Study of the Needs and Provisions for Families Caring for Children with Life-Limiting Incurable Disorders. HMSO, London
Ministry of Health (1959) The Welfare of Children in Hospital (Platt Committee Report). HMSO, London
NHS/DoH (1996) The Patient’s Charter, Services for Children and Young People. HMSO, London
Ministry of Health (1976) Fit for the Future — Report of the Court Committee on Child Health Services. HMSO, London
RCN PDSIG (1998) (RCN Paediatric Diabetes Special Interest Group) The Role and Qualifications of the Nurse Specialising in Paediatric Diabetes. RCN Publications, London
RCN PCN Forum (1994) (RCN Paediatric Community Nurses Forum) Wise Decisions, Developing Paediatric Home Care Teams. RCN Publications, London
WHO (1989) (World Health Organisation) St Vincent Declaration. WHO, Copenhagen
Yorkshire Regional Health Authority (1992) New Horizons. Approach to Children’s Nursing — A Strategy Consultation Paper. HMSO, London

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